Hello! I am writing this on the day after Passover, or on Easter
Sunday, for those of the Christian faith. We started the morning seeing off our
friends from Nova Scotia who had come for a quick visit, which was wonderfully
fun. Then we went to church. The Hallelujah Chorus still gives me goosebumps. And
I do believe in the Resurrection. I could give up all the other miracles if the
theologians made me, the loaves and fishes and even the virgin birth, but not
the Resurrection. My nine-year-old has pronounced it “ridiculous,” but I told
him it is no more ridiculous than the fact that we are all here in the first
place.
The
Resurrection story resonated differently for me this year, now that I feel like
I have kind of snatched life out of the jaws of death. I feel for the first
time I have a glimmer of understanding of what Jesus meant when he was dying and he said, “My God, my God, why have You forsaken me?” And it was good to sing the Easter songs. Where, O death, is now thy sting? Truly.
After
church, I had my own Easter plan. Instead of our usual egg hunt and big dinner,
I was going to get busy living some more. Specifically, I had a project to work
on my phobia about heights.
I don’t
like heights. That is putting it mildly. I can’t even climb to the top of a
household ladder. I can only get on airplanes thanks to modern pharmaceuticals,
specifically Xanax.
How
this all will relate to having cancer, I will get back to eventually. Cut me
some slack for a few minutes.
I’ve
been working on getting over this phobia for the last couple of years, since before
I got sick. I have been to the top of the Empire State Building in New York.
Then, when we were in Chicago, I went to the top of the building formerly known
as the Sears Tower, now called the Willis Tower, where you can stand out in a
glass box with a glass floor, 103 stories over Wacker Drive. I had to crawl out
onto the glass ledge at first, but eventually I was able to stand up. That
looked like this:
Then,
when we went to Montana to visit my mom, I walked a part of the Highline Trail
in Glacier National Park which had completely flummoxed me a couple years
earlier. I had tried to hike this with John and my three kids, and I absolutely
froze up. Burst into tears. Couldn’t go forward or backward. Ruined the hike
for the whole family, although I eventually was able to walk back the short
little way I had gone.
Later
that day, I decided I would have to go back there some time and do it if I was
going to live with myself. It took me a
couple of years to get back there at a time when the trail wasn’t buried under
10 feet of snow. But in 2010 I did the hike with my friend, Steve. The outward
trip was terrible; I was dizzy and panicky and couldn’t look at anything but
the back of Steve’s neck as he walked in front of me. But eventually something
cracked in my mind, like your knuckles cracking, only it was in my brain. I
just literally snapped out of it. The trip back was fine. It looked like this.
This is me:
Now,
back in Maryland, I had been similarly flummoxed several years earlier by a
simple rope swing up at Cunningham Falls State Park. At that time, I had chickened out of even
once getting on the rope swing, which was basically just a knot in a big rope
that you stood on and swung out over a ravine. Other people were having a great
time with it, but I simply could not do it. It got to bugging me. I had set a
poor example for my kids. But the next time I went up there, a couple years
later, the rope swing was gone, so I had lost my chance to redeem myself.
And
then our school built a big Adventure Park full of high ropes courses on some
land it owns. There are several different courses in the park, ranging from “purple”
level for kids to “double-black-diamond” for strong adults. I knew I would have to do it a ropes course there
one day.
It took
me some time to get there. At first, I just was afraid. And then, I got all busy
having cancer. Then I was too sick for a few months because of the chemo, and
then I had surgery and my arm was messed up for a while, and I had to do
physiotherapy and work with a trainer to get back my upper-body strength. But now
my arm is doing great and I have no more excuses. So when the Adventure Park
opened for the season recently, I couldn’t really put it off any longer.
My son,
Sean, who is 17, actually likes the ropes courses. Sean does them for fun. He pays good money for the
privilege. He goes on the scarier, higher ones. So I asked him if he would take
me on the bunny slope of ropes courses, and he agreed. I thought Easter would
be a good day for it. The crowds would be small, I thought, and I would be full
of the power of the Resurrection story. Nothing is impossible with God, as they
say. I can do all things through Christ, who strengthens me. Right?
I almost
didn’t make it. I almost got too dizzy
going up the log stairway to the first
platform, which small children were practically skipping up with no problem.
Seriously, I have issues. But I wasn’t going to give up before I even started.
I have some pride, somewhere, so I kept going. A park staffer advised me
strongly to take a “purple” route, one of the ones designed for five- to
seven-year-olds. The purple routes were maybe twelve feet off the ground. It
may as well have been a thousand feet above Wacker Drive, as far as I was
concerned.
Sean
went ahead of me, to show me where to put my hands, and to demonstrate which
way the obstacles moved (which most of them did) and to warn me about any scary
noises I was likely to hear.
The
first element of the course, a bridge made of netting between two trees, was
not terrible. It didn’t move very much, and all it took to get across was more
or less just regular walking. I made it to the other side.
“Bam!”
said Sean. In the bag.
But the
next element was not so simple. It consisted of a series of short four-by-fours,
each suspended in mid-air, forming an extremely wiggly bridge you had to walk
across. They did move, sideways and also forward-to-back. And they made scary
creaking sounds, as if they were fixing to break any time now. And you had to
step from each one onto the next one. I think it was about halfway across that
that I just burst into tears. Now I was dangling in mid-air on a four-by-four
that was swinging back and forth and creaking, and I was crying, and I couldn’t
even let go of the cable to get a tissue. Altogether dignified.
I looked
ahead to Sean.
“Hey,”
he said. “You are from Montana.”
That
comment got me across that first bridge. When I got to the platform on the end,
built around a large tree, I clung to the tree and sobbed.
There
were more elements. There was one that wasn’t so bad, basically a plain log,
and then another wiggly, scary one.
And
then there was a tightrope. You had two cables to hold onto, and a third one to
walk on. That was it.
“They
have got to be kidding,” I said. “Jesus.”
I started saying “Jesus” a lot. And then I
started swearing. But there was no going backwards, and I decided I was not
going to call a staffer to rescue me like a cat up a tree. I made it across. We
paused to let a five-year-old scamper by.
Then there
was a bridge that was basically a stable horizontal ladder you could walk on,
only there wasn’t anything to hang onto. That terrified me, partly because I
have hardly any sense of balance.
There
was another bridge of suspended pieces of lumber, only the last one was at an
angle, so that it made a ramp you had to climb up while it was all jiggly.
“How am
I going to get up this board?” I whimpered.
“You
are going to use the brute strength you have got in your arms from working out
with your mean trainer these last two months,” Sean said. So I did.
The last
element of the course was a zip line. This was the thing I was dreading the
most, because you have to trust your equipment, basically a pulley hung on a
cable, and just jump off the platform and glide. I was not sure I could do
that. Sean was afraid he was going to have to push me off the platform, and
when I sent him ahead of me he was afraid I would be marooned.
But
that one element was the one that turned out to be actually sort of fun. I
could do that again. It was kind of pleasant. It did not go as fast as I had
worried it would. I had actually worried I would black out halfway across, and
the fire department would have to come get me. But I wasn’t even tempted to
black out, or curse or cry. It was fun. Sean took a video and I was actually
smiling:
So,
what does all this have to do with having cancer? There were three main things
that struck me:
1. Having cancer has taught be a lot about how to mentally
overcome unpleasant situations.
I have
always been pretty good at avoiding unpleasant situations or feelings. This
made me a comfortable person, but a poor risk-taker. But you can’t avoid
unpleasantness while you are doing chemo, or figuring out how to be a parent
while maybe you’re dying, or working out how to stay married even when even
when you are falling apart. You just have to figure out how you are
going to do it.
Getting
across that first wiggly bridge was like that.
I have
heard cancer people say that having cancer makes you “stronger.” I used to
think, well, that’s nice. I get it now. I probably couldn’t have done that zip
line or that tightrope before I got sick. I hadn’t practiced doing hard things
enough; I had just avoided them. But now I have breast cancer under my belt,
and what is scary these days is relative.
Margaret
Mitchell wrote about this in Gone With the Wind. When Scarlett O’Hara’s
mom has died and her dad has lost his mind and most of Tara has been trashed by
the Yankees, Grandma Fontaine tells Scarlett, “Child, it’s a very bad thing for
a woman to face the worst that can happen to her, because after she’s faced the
worst she can’t ever really fear anything again. And it’s very bad for a woman
not to be afraid of something…God intended women to be timid frightened
creatures and there’s something unnatural about a woman who isn’t afraid.”
Well,
Grandma Fontaine thought it was very bad, but I think it’s great.
Now, I
am not kidding myself. Having breast cancer is not the worst thing that can
happen, and I know that. I know full well that any number of things, such as having
a child with cancer, would be much worse. But it was bad enough. And because of
it, not only am I lots better at dealing with the fears I do have, but also
there are some things that just don’t scare me much anymore. I used to be
afraid of going to the dentist. Not anymore. And I never thought I’d be able to
jump off a platform onto a zip line, but it wasn’t even hard.
I think
it was before crossing the tightrope that I said to Sean, “Okay, I have done
four months of chemo. I can do this.”
“I have
no doubts,” he replied.
2. Now I am spending some time wondering, what else is out
there that would turn out to be wonderful if I just gave it a shot.
This
sort of follows from the above. If that zip line, which was the thing I was
dreading, turned out to be the one thing that was actually fun, what else is
out there like that? I have to seriously figure out if there are other things
that I have been avoiding, that are precisely the thing that would be best to
do. I am sure there are.
Or, as
one of my church friends would say, I should be checking out my own darkness to
see what’s useful in there. There’s some
pretty good stuff in my darkness, it turns out.
3. Having cancer sort of lit a fire under my butt to start
living more fully and mindfully. The rest of you, anyone reading this, learn
from my mistakes and don’t wait to get cancer to light a fire under your butt.
If
having cancer means you get to have a soapbox, my first soapbox would be one for
me to stand on and tell my women friends to get their mammograms. But the next one would be for me to
stand on and tell everyone not to wait as long as I did to get busy living.
I have
pissed around a lot. I have wasted a lot of time, sometimes in the name of
motherhood or what I “should” be doing or out of fear of what might be
inconvenient or impossible.
I have
a friend, Bev, who went to my church until she moved away, and we used to be in
a Bible study together. She is currently fighting a recurrence of ovarian
cancer. On my one-year-survivor anniversary, she wrote me a lovely note. In it,
one of the things she said was:
“Isn't it a shame that we have to get this kind of wake-up
call in order to see what is really important in life. People, don't wait until
you get a wake-up call - do what is important to you in this life now! You
don't always get the time Katie and I have had to make your plans! Do it now!!!!”
What
she said. Amen.
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